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Biobanks - 2011 Yearbook

Published By :

GBI Research

Published Date : Mar 2011

Category :

Biotechnology

No. of Pages : 76 Pages


GBI Research, the leading business intelligence provider, has released its latest research, Biobanks - 2011 Yearbook. It provides key data, information and analysis of the 40 major biobanks in the world. The report provides information on the population-based biobanks, disease based biobanks, brain biobanks, stem cell biobanking, twin registries, children biobanks and many national biobanks. 

This report provides comprehensive analysis of funding, harmonization, cost of biobanking, and partnership structure. It also reviews the factors determining the success and failure of the biobanks. It is built using data and information sourced from proprietary databases, primary and secondary research and in house analysis by GBI Researchs team of industry experts.

Biobanking is a relatively new field with promising potential. It presents a host of opportunities and challenges. The number of biobanks increased significantly during the period 1989-1999. Funding patterns have changed as biobanks have evolved. In a comparative study of more than 100 biobanks around the world, many biobanks were found to be stand-alone, with the whole funding received by the government of the country. 

Around 70% biobanks are stand-alone, whereas only 30% are partnered with other biobanks or institutions. With globalization and the growing interest in trans-national sharing of biobank resources, there is an increasing push to harmonize biobank processes and regulations. The setting up of the biobank is the most costly phase of a biobanks development and lifespan. The maintenance of a biobank is marginal compared to the set up of a biobank. 

Scope

The scope of this report includes - 

  • Comprehensive study of 40 major biobanks in the world along with the current trends in biobanking.
  • Detailed account of population-based biobanks, disease-based biobanks, brain biobanks, stem cell biobanking, twin registries, children biobanks and many national biobanks.
  • Comparative study of major issues of biobanks including funding, harmonization, cost of biobanking, partnership structure, regulatory and ethical issues.
  • In-depth analysis of the major development in the leading segments of the biobanks with key emphasis on major challenges in the biobanking sector.

Reasons to buy

The report will enhance your decision making capability. It will allow you to -


  • Evaluate major biobanks in the world, their service providers, research collaborations and private sector involvement.
  • Analyze issues of funding, harmonization, cost of biobanking, and partnership structure that determine strength and limitation of a biobank.
  • Develop strategic initiatives by understanding the key focus of research of the leading biobanks.
  • Accelerate and strengthen your market position by identifying key biobanks for mergers, acquisitions and strategic partnerships to accelerate research and development.
  • Device better strategies through the understanding of key drivers and barriers in the market.
  • Develop understanding on recent developments in biobanking regulatory frameworks and ethical issues like informed consent, withdrawal of ownership, confidentiality and commercialization.
Table of Contents

1 Table of Contents 3

1.1 List of Tables 7
1.2 List of Figures 7

2 Biobanks Introduction 8

2.1 GBI Research Report Guidance 9

3 Biobanks The Basics 10
3.1 Introduction 10
3.1.1 DNA Banks 11
3.1.2 Cell Culture Banks 11
3.1.3 Pathologically Altered Vital Tissue Banks 11
3.2 Biobanks - Brief History 12
3.2.1 Framingham Heart Study 12
3.2.2 Monitoring of Cardiovascular Diseases Project 12
3.3 Characteristics of a Biobank 13
3.4 Classification of Biobanks 14
3.4.1 Population-Based Biobanks 14
3.4.2 Disease-Based Biobanks 14

4 Biobanks Overview 15
4.1 Introduction 15
4.2 National Biobanks 15
4.3 Funding Structure in Biobanking 16
4.3.1 Funding Issues 16
4.3.2 Private Funding 16
4.3.3 Public-Private Funding 17
4.3.4 Public Funding 17
4.4 Partnerships Structure in Biobanking 17
4.4.1 Comparison of Partnerships 18
4.5 Increasing Harmonization 18
4.5.1 Biobanks Participating in Harmonization 18
4.6 Expert Centers Trans-national Research 19
4.6.1 Benefits of Expert Centers 19
4.7 Cost of Biobanks 20
4.7.1 Sample Collection 20
4.7.2 The Set up of the Biobank 20
4.7.3 Maintenance of the Biobank 20
4.7.4 Research Costs 20
4.7.5 Outreach Activities 20
4.7.6 Conclusion 20
4.8 SWOT Analysis of Biobanking Sector 21

5 Biobanks Population-based Biobanks 22
5.1 Introduction 22
5.1.1 Cohort study or Panel Study 23
5.2 deCODE Genetics 23
5.2.1 Background Information 23
5.2.2 Organizational Structure 24
5.2.3 Financial Support 24
5.2.4 Collaborations 25
5.2.5 Future Plan 25
5.3 CARTaGENE 26
5.3.1 Background Information 26
5.3.2 Organizational Structure 26
5.3.3 Financial Support 26
5.3.4 Collaborations 27
5.3.5 Future Plan 27
5.4 Genizon Biosciences 27
5.4.1 Background Information 27
5.4.2 Organizational Structure 27
5.4.3 Financial Support 28
5.4.4 Collaborations 28
5.4.5 Future Plan 28
5.5 Jurilab 29
5.5.1 Background Information 29
5.5.2 Organizational Structure 29
5.5.3 Financial Support 29
5.5.4 Collaborations 29
5.5.5 Future Plan 29
5.6 LifeGene 30
5.6.1 Background Information 30
5.6.2 Organizational Structure 30
5.6.3 Financial Support 30
5.6.4 Collaborations 30
5.6.5 Future Plan 30
5.7 UK DNA Banking Network (UDBN) 31
5.7.1 Background Information 31
5.7.2 Organizational Structure 31
5.7.3 Financial Support 32
5.7.4 Collaborations 33
5.7.5 Future Plan 34
5.8 European Network for Genetic and Genomic Epidemiology (ENGAGE) 35
5.8.1 Background Information 35
5.8.2 Organizational Structure 36
5.8.3 Financial Support 36
5.8.4 Collaborations 37
5.8.5 Future Plan 37
5.9 TRANSBIG Network 37
5.9.1 Background Information 37
5.9.2 Organizational Structure 38
5.9.3 Financial Support 38
5.9.4 Outreach Strategies 39
5.9.5 Collaborations 39
5.9.6 Future Plan 39
5.10 Iceland Health Sector Database 39
5.10.1 Background Information 39
5.10.2 Organizational Structure 39
5.10.3 Financial Support 39
5.10.4 Collaborations 39
5.10.5 Future Plan 40
5.11 Tumor Bank of Castilla-Leon (BTCyL) 40
5.11.1 Background Information 40
5.11.2 Organizational Structure 41
5.11.3 Financial Support 41
5.11.4 Collaborations 41
5.11.5 Future Plan 41
5.12 Telethon Genetic Biobank Network 42
5.12.1 Background Information 42
5.12.2 Organizational Structure 42
5.12.3 Financial Support 43
5.12.4 Collaborations 43
5.12.5 Future Plan 43
5.13 EuroBiobank 44
5.13.1 Background Information 44
5.13.2 Organizational Structure 45
5.13.3 Financial Support 46
5.13.4 Collaborations 46
5.13.5 Future Plan 46
5.14 Latvian Biobank 47
5.14.1 Background Information 47
5.14.2 Organizational Structure 47
5.14.3 Financial Support 47
5.14.4 Collaborations 47
5.14.5 Future Plan 47
5.15 Canadian Partnership for Tomorrow Project 48
5.15.1 Background Information 48
5.15.2 Organizational Structure 48
5.15.3 Financial Support 48
5.15.4 Collaborations 48
5.15.5 Future Plan 48

6 Biobanks Disease-Based Biobanks 49
6.1 Introduction 49
6.2 Cancer Biobanks 49
6.2.1 Victorian Cancer Biobank 49
6.2.2 The Ontario Tumor Bank 50
6.2.3 The Canadian Tumor Repository Network 51
6.2.4 Tumor Tissue Repository 51
6.3 Brain Biobanking 52
6.3.1 Huddinge Brain Biobank 52
6.3.2 MRC London Brain Bank for Neurodegenerative Diseases 53
6.3.3 The MRC HIV Brain and Tissue Bank 54
6.3.4 The MRC Sudden Death Brain and Tissue Bank 54
6.3.5 CJD Brain and Tissue Bank 55
6.3.6 UK Multiple Sclerosis Tissue Bank 55
6.3.7 South West Dementia Brain Bank 56
6.3.8 Queen Square Brain Bank for Neurological Disorders 56
6.3.9 Newcastle Brain Tissue Resource 57
6.4 Twin Registries 57
6.4.1 GenomeEUTwin 57
6.4.2 The Australian Twin Registry 58
6.4.3 The Mid-Atlantic Twin Registry 59
6.5 Stem Cell Biobanking 60
6.5.1 The Singapore Stem Cell Consortium 60
6.5.2 Coriell Stem Cell Biobank 60
6.5.3 Swiss Stem Cells Bank 61
6.6 Children Biobanks 61
6.6.1 The Norwegian Mother and Child Cohort Study (MoBa) 61
6.6.2 Avon Longitudinal Study of Parents and Children (ALSPAC) 62
6.7 Largest Biobanks and Biobanking Networks in the World 63
6.7.1 The Public Population Project in Genomics (P3G) 63
6.7.2 Estonian Genome Project (EGP) 65
6.7.3 Singapore Tissue Network 66
6.7.4 UK Biobank 67
6.7.5 International Genomics Consortium (IGC) 67

7 Biobanks Regulatory and Ethical Issues 69
7.1 Introduction 69
7.2 Informed Consent 69
7.3 Withdrawal and Ownership 69

8 Biobanks Challenges in Biobanking 70
8.1 Ethical and Legal Challenges 70
8.1.1 Technological Challenges 71
8.2 Future Challenges of Biobanking 72
8.3 Conclusions 72

9 Biobanks Appendix 73
9.1 Market Definitions 73
9.2 Abbreviations 73
9.3 Research Methodology 75
9.3.1 Coverage 75
9.3.2 Secondary Research 75
9.3.3 Primary Research 75
9.3.4 Expert Panel Validation 76
9.4 Contact Us 76
9.5 Disclaimer 76
9.6 Sources 76

List of Table


Table 1: Comparison of Funding Sources for Eight Major Biobanks - 2010 16
Table 2: International Biobanks involved in Harmonization Program 18
Table 3: Applications and Strengths of Population-based Biobanks 22
Table 4: deCODE Genetics Overview- 2009 23
Table 5: CARTaGENE Overview- 2009 26
Table 6: Genizon Biosciences Overview - 2009 28
Table 7: Jurilab Overview - 2009 29
Table 8: LifeGene Overview - 2009 30
Table 9: Biobanks, Type and Number of Sample Collections Available at UDBN- 2010 32
Table 10: The UK DNA Banking Network Overview - 2009 33
Table 11: European Network for Genetic and Genomic Epidemiology Overview - 2009 35
Table 12: TRANSBIG Network Overview - 2009 37
Table 13: Iceland Health Sector Database Overview - 2009 40
Table 14: Applications and Strengths of Disease-Oriented Biobanks - 2010 49
Table 15: Largest Children Biobank Projects around the World - 2010 62
Table 16: Biobanks with Sample Sizes of

List of Chart


Figure 1: Biobanks, Global, Increase in Number of Biobanks (%), 1970-2010 8
Figure 2: Biobanks, Global, Anticipated Benefits 10
Figure 3: Type of Data and Sources Obtainable in Biobanks 11
Figure 4: Biobanks, Global, Benefits to Major Areas of Research 13
Figure 5: Biobanks, Global, Classification: Type of Sample Availability 15
Figure 6: Biobanks, Global, Type of Partnerships (%)-2009 17
Figure 7: Biobanks, Global, Ownership (%)- 2009 18
Figure 8: Biobanks, Global, Expert Centers Facilitating Trans-national Research 19
Figure 9: SWOT Analysis of Biobanking Sector 21
Figure 10: deCODE, Funding Sources (%) - 2009 24
Figure 11: ENGAGE, Funding Sources (%) - 2009 36
Figure 12: TRANSBIG, Network Funding Sources (%) - 2009 38
Figure 13: EuroBiobank, Main Objectives - 2010 45
Figure 14: Huddinge Brain Biobank Funding Sources - 2009 52
Figure 15: Frequency of Registrants by Age at Mid-Atlantic Twin Registry - 2010 59
Figure 16: P3G Partner Projects - 2010 64
Figure 17: Issues on Consent of Personal Information 69
Figure 18: Percentage of Increasing Capacity and Number of Biobanks 2009 71
Figure 19: Major Issues Threatening Biobanks - 2010 72

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